ION Chat: From Awareness to Acceptance, and Beyond

“We should not fit our life to the demands of social conformity; we can’t find a model to live by from others, we can only find that within ourselves.”

“We do not think of the neurodiversity movement as one that seeks to integrate neurominority people into all the existing ways of living in the world as a human being.”

“There is a certain way of being human that is our way. We want to be free to live our life in our way, and not in imitation of other’s life.”

ION Monthly Chat Summary – May 25: From Awareness to Acceptance, and Beyond

by Susan Mackay 

In April’s ION community chat, members from across the globe gathered virtually for another deep, insightful, and often moving conversation centred around neurodiversity. The tone was warm and welcoming, with early conversations meandering through spring weather, recent events, and travel tales—before diving headfirst into a discussion full of personal sharing social commentary and calls to action.

Rising Tensions, Rising Voices

The group opened by responding to a timely and troubling theme: increasing media stigma around autism, particularly following high-profile cases and controversial public statements. There was clear frustration at the way autistic identities are used to explain or excuse violent behavior, reinforcing dangerous stereotypes. As one participant said with some emotion, “I don’t want awareness – I want acceptance.”

This sentiment rang true throughout the discussion, with many noting how media narratives tend to focus on extremes, overlooking the everyday brilliance, compassion, and contribution of neurominority individuals. There was a shared call to push back—creatively, politically, and collectively—against a social norm of stigma and to replace this with a more authentic narrative of capability and diversity.

From Silence to Advocacy

One recurring theme was the emotional cost of speaking up in unsupportive environments. Several members shared painful stories of workplace backlash, misinterpretation, or being silenced for simply advocating for themselves or asking questions. Others highlighted a quiet transformation—how slowly, in some spaces, authenticity and openness are becoming possible.

One member described coming out as a neurominority at a public panel after years of masking and being approached afterwards by two others who felt seen and safe enough to share their own identities. “I wonder,” they asked, “is acceptance rising—or am I just finding my tribe?” The answer from the group was both.

Neurodiversity in the Political and Cultural Arena

Participants also explored how neurodiversity intersects with politics, activism, and broader systems. Concerns were raised over recent policy trends, including proposed autism registries and routine screening tied to gender identity—both seen as dangerous steps backward. There was strong agreement that these developments must be challenged and reframed, not just defensively, but proactively—with stories, advocacy, and systemic change.

Activists in the group highlighted the need for neurominority representation in public life, from education to policing to AI ethics. Some discussed the power of the arts—festivals, films, music—as vehicles to communicate neurominority experiences and challenge stigma in ways that formal systems rarely allow.

Labels, Diagnosis, and Identity

A particularly rich discussion unfolded around the paradox of diagnosis. Several members shared how receiving a diagnosis brought relief, clarity, and self-acceptance—but also reinforced a medical model that paints difference as deficit. “Why is the only path to understanding ourselves through a diagnosis that assumes we’re broken?” one member asked. There were no simple answers—just a collective agreement that society’s frameworks must evolve beyond binary labels and medical boxes.

Bright Spots: Creativity, Connection, and Courage

Amid many heavy topics, the session ended with a sense of optimism and creativity. Participants spoke of building new tools, launching neurominority-friendly ventures, and rewriting school and workplace practices from the ground up. One member dreamed aloud about the first neurominority superhero film, while another proposed flipping classroom discipline on its head with executive function skills training.

Even small moments, like seeing more sensory spaces at airports or encountering compassionate educators, were held up as glimmers of hope and change.

Final Reflections

As always, the ION chat was a space where complexity, nuance, and shared humanity were welcome. Whether sharing heartbreak, hope, or humour, members showed up for one another—and reminded us all that progress comes not only from grand policy changes, but from many individual acts of self-advocacy, creativity, and courage.

Next Steps:

  • Writers welcome! If you’re inspired to turn your story or insight into an article for ION’s publication, reach out to the editorial team.
  • Stay connected. Use the monthly chats, LinkedIn, and other networks to keep these vital conversations going.
  • Bring a friend. Invite others to next month’s chat—community grows when voices multiply.

Until then, thank you for showing up. As one participant put it: “If we make the world safer for neurodivergent people, we make it safer for everyone.”

 

Susan Mackay

Author: Susan Mackay

With over 20 years of experience in empowering, coaching, and mobilizing for social change, Susan Mackay is a catalyst, coach, and changemaker who has worked in more than 40 countries to spark positive and meaningful change. Specialising in neurodiversity and inclusion, she is an internationally certified individual and Team Transformation Professional Coach and a certified facilitator in various methods, including LEGO® SERIOUS PLAY® and Human-Centered Design. Susan employs creative approaches to help individuals, families, and professional teams co-create their vision and action plans. Her rich cross-cultural experience includes senior roles at Gavi, the Vaccine Alliance, UNICEF, WHO, and the BBC, where she led impactful initiatives and built effective global partnerships.

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