The Institute Of Neurodiversity – “ION” is committed to protecting your privacy and the confidentiality of your personal information. The policy describes what information ION may collect about you; how we use your information; how we protect it; and what rights you have in relation to the personal data we hold about you. Being incorporated in Switzerland the policy adheres to the Swiss Federal Data Protection Act as revised on 25th September 2020.
When you provide personal data about yourself to us, you are deemed to have consented to our collection, use and/or disclosure of your personal data for the purposes set out in this policy. The information that we process is that which is reasonably necessary in relation to your ION membership.
We may also obtain data from you by way of details of your visits to our website including, but not limited to, location data, traffic data and usage of a desktop or tablet device.
Our directory is only visible to ION members. In line with our values, we want to encourage our members to collaborate together while still maintaining their individual privacy. Upon completing your membership profile there are some fields that we have set by default to appear in the membership directory. We believe it’s important for you to know what these are and be aware that you have the option to change them.
ION members can edit their own personal privacy settings within their website member profile at any time should they wish to show more or less visibility to fellow members, including changing the default settings we have initially applied to whatever suits them best.
We have limited the default visible personal information that will appear on the member directory to; name and photo and a short description about you (should you choose to include them) with the addition of organisation, for corporate bundle members only.
We have also enabled a member send message form that by default allows all ION members to be emailed by other members without revealing the recipient’s email address. The email received is sent via ION, but contains the senders contact email to enable the recipient to reply should they wish (replying will divulge your email address)
We encourage our members to set their own member profile privacy settings to whatever they are comfortable sharing with the ION members community. ION Institute of Neurodiversity are not responsible for the content of any communications between its members.
What types of personal data do we collect?
We may collect some or all of the following personal, special category and non-personal data:
We may collect your personal data in a number of ways, as follows:
Your rights are as follows:
If you wish to exercise any of these rights please contact us at firstname.lastname@example.org
You may ask us to confirm what information we hold about you at any time, and request us to modify, update or delete such information. We may ask you to verify your identity and for more information in connection with your request.
You can access and modify your own member profile information at any time.
If we provide you with access to the information we hold about you, we will not charge you for this unless your request is “manifestly unfounded or excessive”. If you request further copies of this information from us, we may charge you a reasonable administrative cost where legally permissible. Where we are legally permitted to do so, we may refuse your request. If we refuse your request we will always tell you the reasons for doing so.
All personal data is processed and stored securely, for no longer than is necessary in light of the reason(s) for which it was first collected for the performance of our contract with you, because you have consented to our use of your personal data (e.g. by subscribing to emails), or because it is in our legitimate interests.
With your permission and/or where permitted by law, we may also use your information for marketing purposes which may include contacting you by email and/or telephone and text message with information and news on our products and services. We will not, however, send you any unsolicited marketing or spam and will take all reasonable steps to ensure that we fully protect your rights.
We may also advise you of relevant news and neurodiversity updates, events and other information, products or services of ours that we think may be of interest to you. You can unsubscribe from these communications at any time. You may also object to the processing of your personal data for this purpose by contacting email@example.com
We may store and retain your personal data in order to carry out any of the uses specified above, normally for a period of 10 years. It should be noted that electronic copies of information are treated as original documentation.
Your personal data may be shared with or accessed by:
In some cases your personal data may be transferred to countries outside Switzerland as ION is a global membership organisation.
We will ordinarily process your data throughout the course of our interactions and will then generally retain it for an appropriate amount of time thereafter. In determining the appropriate retention period for various types of personal data, in addition to ensuring that we comply with our legal, regulatory and risk management obligations, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we need to process your personal data data relating to your activity on our website.
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