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  • 25 Oct 2021 5:37 PM
    Message # 11914961
    Charlotte Valeur (Administrator)

    We would like to hear from our members which topics you would like to propose for research. We will use your input to influence ND research around the world to include what we find of importance. Traditionally most research have been conducted around us as supposed to in collaboration with us. We want to change that for the better of us all.

  • 26 Oct 2021 4:52 PM
    Reply # 11962655 on 11914961
    Morwenna Stewart (Administrator)

    It'd be great to have research into which therapies or interventions are beneficial (or harmful) for autistic people. Currently (in the UK and globally, I expect) some commonly used interventions aren't always evidence-based.

    Last modified: 7 Nov 2021 10:36 AM | Morwenna Stewart (Administrator)
  • 1 Nov 2021 10:09 AM
    Reply # 12088489 on 11914961
    Andrew Eddy

    That sounds excellent!

  • 7 Nov 2021 10:34 AM
    Reply # 12107085 on 11914961
    Morwenna Stewart (Administrator)

    https://a4aontario.com/2020/12/06/2020-has-not-been-a-good-year-for-aba-a-research-review/#comments

    Some good meta analysis studies into why conversion therapies are ineffective and harmful. Plus research on bias and undeclared conflicts of interests.

  • 7 Nov 2021 10:41 AM
    Reply # 12107095 on 11914961
    Morwenna Stewart (Administrator)

    Evidence on harms: https://www.researchgate.net/publication/322239353_Evidence_of_increased_PTSD_symptoms_in_autistics_exposed_to_applied_behavior_analysis

  • 7 Nov 2021 6:01 PM
    Reply # 12107752 on 11914961

    Thank you Morwenna, great research to build on

  • 17 Nov 2021 2:27 PM
    Reply # 12133080 on 11914961

    The charity Autistica have published a report about the urgent need for research about early death in autism.  I think it would be extremely useful to try and determine what factors in the workplace may lead to negative mental and physical health outcomes for the neurodivergent in general, and which may therefore contribute to an autistic person on average diying 16 years earlier than a neurotypical person.  Many of us will have experience of negative mental and physical outcomes as a result of experiences in the workplace - however we are isolated and as individuals it is challenging to push back and effect change without evidence.  The Autistica report can be found here and makes disturbing reading.  Personal tragedies, public crisis

  • 19 Nov 2021 10:49 AM
    Reply # 12136984 on 11914961

    I found this article incredible because this was one of my own "wacky" theories about 10 years ago... When the schooling system was driving away the children really... And now this anthropologist is bringing social ties to all this as opposed to just treating with drugs (I can imagine the pharmaceutical companies will push back so this is vital that we enquire whilst they are busy with another agenda!!).

    Explaining of article :

    https://www.forbes.com/sites/alisonescalante/2020/08/11/researchers-doubt-that-certain-mental-disorders-are-disorders-at-all/?sh=1da672fa15a6


    Article and research study:

    https://onlinelibrary.wiley.com/doi/full/10.1002/ajpa.23965


    Voilà just a thought that is dear to my heart and because we want to change the schooling systems globally it may be of interest to work directly with this person? so as to have other angles, and ones that others believe because science backed...

    PS May not be totally in response to queries here but did not know where else or how else to post ;) 

    Last modified: 19 Nov 2021 10:51 AM | Anonymous member
  • 23 Nov 2021 12:11 PM
    Reply # 12144058 on 11914961
    Morwenna Stewart (Administrator)

    The Autistica report is sobering reading. Its findings underpin everything we do at ION. Anyone who's ND has poorer outcomes and we seek to change that - and that's for all neurotypes.

  • 8 Dec 2021 7:18 PM
    Reply # 12177933 on 11914961
    Charlotte Valeur (Administrator)

    SAGE in collaboration with ION are launching a Neurodiversity research Journal starting with a call for editors, see attached.

    1 file
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